Sources of support for people with appearance concerns
We're unable to provide direct support, although there are many organisations below that can. You can also view a selection of support forums.
Provides support and information for people with short-limb dwarfism and their families and carers.
Adult Burn Support
A website funded by Dan's Fund for Burns that signposts users to the most helpful resources and information on the aftercare/support available to burn-injured adults in the UK.
Patient information service for people with all types of allergies including skin allergies.
Help, support and advice for people with alopecia and all hair loss conditions.
Support groups and information for people with alopecia.
Am I Normal?
Aims to inspire, support and inform young people on a range of topics, from developing self-confidence to knowing the best ways to stay safe online.
Provides support and information for people with all forms of arthritis.
Be Real Body
Information to promote body confidence.
Beat provides helplines, online support and a network of UK-wide self-help groups to help adults and young people in the UK beat their eating disorders.
Represents Behçet’s disease patients and their carers in the UK and supports people who think they may have Behçet’s disease.
Help and information for people with Bell’s Palsy.
Support group for people with birthmarks.
Support, information and advice for those with or recovering from breast cancer.
British Acoustic Neuroma
Offers information and advice to people with acoustic neuroma, and offers local support groups.
British Association of Dermatologists
Fact sheets on general dermatological conditions.
Unit Group Support)
Post-hospital support for burns patients in the south of England.
Information and support for those affected by Congenital Melanocytic Naevi.
Childhood Eye Cancer
Support for people affected by retinoblastoma.
A UK charity that supports and represents people who have disfigurements of the face or body from any cause.
Children's Burns Trust
Provide information and support for burned and scald injured children and their families as well as prevention and awareness campaigns.
Cleft Lip and Palate Association
Provides information, advice and practical support to people with and affected by cleft lip and/or palate in the UK.
Cystic Hygroma and
Lymphangioma Support Group UK
Support group for children and adults with lymphatic malformations (Cystic hygroma or lymphangioma).
Helps people with epidermolysis bullosa and researches cures.
Offering practical help to burn survivors in the UK.
A charity dedicated to improving the health and wellbeing of people whose lives are affected by ectodermal dysplasia and supporting individuals, families and professionals worldwide.
Provides information, support and advice.
Support for people living with facial paralysis.
Information and support services for families who have children with Goldenhar Syndrome.
Support and advice for people with any form of craniofacial condition or syndrome.
Herpes Viruses Association
(SPHERE) and Shingles Support Society
Treatment information and self-help tips for those suffering from shingles, cold sores and herpes-related viruses.
Dedicated to helping hyperhidrosis sufferers get the answers they need.
Promotes the welfare of children and adults affected by ichthyosis.
Lantern online body image
A CBT-based body image and eating disorder prevention programme accessible for women and girls (this is a programme evaluated by Stanford and Washington State University).
Information, advice and support for people with facial differences and their families
Provides information, advice and support for those with amputations. Also provides access to local user groups.
Little People UK
Offering friendship, support and advice to all little people in the UK.
Advice, help and support to people affected by lupus, including condition discoid lupus.
Provides practical, medical and financial support for those affected by cancer.
Men Get Eating Disorders
Support groups and advocacy for men with eating disorders.
A support group for children, families and adults affected by Microtia.
National Ankylosing Spondylitis
Provides information and advice to those with AS. Also offers a forum for patients.
Support and advice to people with eczema.
Offers support and information for people affected by congenital melanocytic nevi.
A Bristol and South Gloucestershire-based service for young people up to the age of 25 which offers confidential counselling and support.
Advice, help and support to people suffering from psoriasis and psoriatic arthritis.
Psoriasis and Psoriatic
Arthritis Alliance (PAPAA)
UK registered charity dedicated to helping people affected by psoriasis and psoriatic arthritis.
Institute of Blind People
Support and services for people living with sight loss.
Emotional support for people with skin conditions, from the British Association of Dermatologists.
Scleroderma & Raynaud's
Information and support to people affected by Raynaud's and scleroderma.
– Dove UK
For evidence-based resources for teachers, parents and youth leaders on how to support adolescents to have positive body image.
Skin Care Cymru
Patient support group for those with any skin condition in Wales.
Information and support group for families and adults affected by Sturge Weber syndrome.
Offers support, advice and information to those affected by acne or rosacea.
Offers support and advice to those with arthrogryposis.
The Association for Lichen Sclerosus and Vulval Health
Information and support about lichen sclerosis.
Association of Skin Camouflage
The specialist authority on para-medical skin camouflage.
The Katie Piper
Advice, information and support for people with burns and scars.
The Lymphoedema Support
Provide information and support to patients with lymphoedema.
The National Artificial Eye
Manufacturing and fitting service for the supply of ocular prostheses.
The Neuro Foundation
Support, advice and help for people affected by neurofibromatosis.
Support, information and networks for anyone affected by pituitary conditions.
Thyroid Eye Disease charitable
Provides information, care and support to people with thyroid eye disease and offers a network of support groups.
Information, help and support for people with vitiligo.
Pigmentosum (XP) Support Group
Support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
Evidence-based eating disorder prevention and body acceptance programme for adolescent girls and young adult women.
The Youth Cancer
Support and free activity holidays for young people (aged 14 to 30) diagnosed and living with cancer or any malignant disease, from anywhere in the UK and the Irish Republic.
Online support forums
Support UK Forum
An online discussion forum for those affected by burn injury to share experiences and support each other. A once a week moderated live online chat is in development and will be available before the end of 2018.
An online community for young carers, and a space for friendship, advice, support and fun.
Big White Wall
An online community of people who are anxious, down or not coping who support and help each other.
For people with eczema to share information and provide support for one another.
For people and families who have any condition or injury that affects their appearance.
Discussion and support for those who have lost an eye to whatever cause or who have monocular vision.
The Psoriasis Club
A small friendly group of people sharing information and support.