Want to participate in research?

Research exploring online support for parents of children with a burn injury

Are you the parent of a child who has experienced a burn injury? We would like to hear from you about the kinds of support that might have helped you, particularly whether online support would have been useful.

The information collected will directly benefit other parents by helping to shape support that is accessible and meets the needs of parents identified during the research.

If you are the parent of a child who has experienced a burn, you are invited to complete our Peer Support for Parents online questionnaire.

If you have any further questions, please contact Jennifer Heath via email jennifer3.heath@uwe.ac.uk or call +44 (0)117 32 87109.

Research exploring adjustment in adults affected by Cleft Lip and/or Palate

A recent cleft lip and palate research priority exercise (James Lind Alliance; JLA, 2012) came up with a list of top priority research questions, one of which is the need to investigate long-term (adult) outcomes of Cleft Lip and/or Palate.

Do you have a cleft lip and/or palate? Are you over 18? Would you like to take part in research that aims to explore the psychological factors that contribute towards adjustment (good or bad) in the long term? If the answer to these questions is yes, please get in touch with Matthew Ridley (Lead Researcher) at Matthew.Ridley@uwe.ac.uk.

YP Face It

'YP Face It' is an online support programme for adolescents aged 13 to 17 who have a condition that affects appearance.

  • Are you 12-17 years old?
  • Do you have any condition, birthmark, scarring or illness that has affected or changed your appearance (the way you look)?
  • Does it bother or upset you in any way?
  • Would you consider being in a research study?

If you answered yes to these questions you may be interested in the YP Face IT study. Take a look at the YP Face It flyer for further details.

The Cleft Collective PPI Pool

If you or someone you know was born with a cleft lip or palate we want you to join our PPI Pool!

The Cleft Collective is the largest cleft lip and palate research programme in the world. From April 2013 the Bristol team will be collecting biological samples and questionnaire data from eligible families across the UK, to help us answer three big questions that parents often ask:

  1. What caused my child’s cleft?
  2. What are the best treatments for my child?
  3. Will my child be OK as he/she grows up?

We are looking for anyone affected by cleft lip and palate (including parents, young people, adults and other family members) to join our ‘Patient and Public Involvement Pool’. We will send you research updates throughout the project and offer you various opportunities to get involved with different aspects of the research.

We are funded by the UK-based charity The Healing Foundation and collaborate with the Cleft Lip and Palate Association. We hope you will join us! Please contact Nicola for more information at nicola2.stock@uwe.ac.uk or call +44 (0)117 32 83913 for further information.

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